Because of the support raised through the Buddy Walk, we’ve been able to expand the Resources section of our website with new, Nebraska-specific tools families have been asking for.
These resources are all live now and were created in direct response to the most common questions we hear from families navigating services, supports, and systems related to Down syndrome. This is the kind of behind-the-scenes work made possible when our community comes together through the Buddy Walk — turning awareness into practical, lasting support.
In the next few weeks , we’ll be highlighting each new resource and explaining why it matters. Families don’t have to wait, though — everything is available today.

Today we are featuring: 

Guardianship or Power of Attorney? Know Your Options.
When a loved one with Down syndrome approaches adulthood, many families hear the same thing:
“You’ll need guardianship when they turn 18.”
But guardianship is not automatic — and it’s not the only option.
That’s why we created a new Nebraska-focused resource to help families understand the full range of legal tools available, including:

• Medical Power of Attorney
• Durable Financial Power of Attorney
• Limited Guardianship
• Full Guardianship
• Representative Payee options

Each option carries different levels of authority and impact on a person’s rights.
Power of Attorney supports decision-making.
Guardianship transfers decision-making through the court.
For some individuals, guardianship may be appropriate. For others, a combination of medical and financial Power of Attorney provides the protection families need — without removing rights.
The most important goal is choosing the least restrictive option that still ensures safety and support.
Informed advocacy starts with knowing all the options.
We encourage families to review this new resource before making decisions about adulthood. Thoughtful planning today protects dignity, independence, and long-term stability tomorrow.
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New Family Resources 
Because of the support raised through the Buddy Walk, we’ve been able to expand the Resources section of our website with new, Nebraska-specific tools families have been asking for.
These resources are all live now and were created in direct response to the most common questions we hear from families navigating services, supports, and systems related to Down syndrome. This is the kind of behind-the-scenes work made possible when our community comes together through the Buddy Walk — turning awareness into practical, lasting support.
In the next few weeks , we’ll be highlighting each new resource and explaining why it matters. Families don’t have to wait, though — everything is available today.

First Highlight: State and Community-Based Waivers
Our first featured resource focuses on State and Community-Based Waivers, an area that has changed significantly in recent years.
Nebraska law has expanded access to Home and Community-Based Services for children and families. In the past, many families were told to wait until adulthood for meaningful waiver options. With the addition of the Family Support Waiver and Katie Beckett eligibility in 2024, families now have pathways to services at much younger ages.  In addition the state has ended the waitlist so families should be able to get Waiver access without waiting for years for a spot to open up.  
This webpage explains what’s changed, what options exist now, and why families may qualify for services sooner than they were told in the past.
Because of the Buddy Walk, we’re able to create and share tools that help families ask better questions, advocate earlier, and better understand what supports should be available.

Learn more about all of the Nebraska Home and Community Based Waivers Here
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 Explore the Resources page:
https://www.dsaane.org/resources.html

We can't wait to see you at the dance this next weekend. Don't forget to register using the button below.  
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