Happy Down Syndrome Awareness Month, Day 5!
Over the weekend one of our families asked us for a fact graphic that could be shared with friends and family. A few hours later this graphic was done and ready to be used to spread awareness and facts. Being able to react and respond in a timely manner to family requests, is one of the things we love about Down Syndrome Advocates in Action Nebraska. You think it, we make it happen. Please feel free to share this educational graphic as you see fit.
Happy Down Syndrome Awareness Month, Day 4! DSAA NE is a 100% volunteer run organization. What that means for our families is that donations can go directly to work to provide, awareness and education. But what it also means is that we owe a great deal of thanks to the men and women who work tirelessly at their paid job to provide support and resources for their own families, but still have time to reach out and share their knowledge, time, energy and resources with other families in the community. We would not be able to work toward our mission, without the hard work of our Board. We thank Deb Safarik, Angie Willey, Shauna Graham, Randy Willey, Suzanne McDonald, Kiffany Conner and Beth Cole for all the work that they do. We would like to also thank all the other volunteers who work hard to put on and attend events, share posts, advocate and work for the good of the community. Many of these volunteers sacrifice a great deal to make Down syndrome advocacy a priority in their lives. We would not be where we are today without their help, hard work and determination. We as a community thank our volunteers for their passion, dedication, and service over the years.
There is always room for growth, if you would like to work on a committee to help DSAA NE extend its reach, host events, manage membership, advertise, fund raise, or any other area of strength you might have, please let us know. There will always be room for those who wish to share their passion and love for individuals with Down syndrome to benefit the greater community. #DSAM2020 #DSAANE
Happy Down Syndrome Awareness Month Day 3! Today we would like to share with you the many ways we put the generous funds donated to our organization to work in the Nebraska Down syndrome community.
This snapshot of our Buddy Walk Sponsorship Brochure gives you a few of the ways we support the community, but there are many other ways funds are put to use. While this year looks a bit different with our in person events suspended due to Covid, we are=working to make sure our families stay safe while remaining connected. We offer 4 pm afternoon socializing clubs on Monday, Wednesday and Fridays for individuals with Down syndrome to connect. We also offered a series of Covid Camps in a box this summer for families who had younger kids to stay active and connect.
In addition to all the items listed above, there are a few other ways DSAA uses donated funds to support their community -
Collaboration with and membership in Local and National organizations like- National Down Syndrome Society, National Down Syndrome Congress, Global Down Syndrome Foundation, One Coalition (that puts on the popular Husker Heroes), Local ARC's, Disability Rights Nebraska and more.
Awareness Activities like our October poster campaign, where every family in Nebraska can have their loved one featured on a awareness poster- free! purchasing bracelets for families to hand out at school, provide peer presentations materials for school, to raise awareness for peers. and more
Advocacy activities like sending representation to the annual senators dinner and keeping up to date on bills that impact our community, Making sure we have representation and testimony at Unicameral hearings when appropriate.
Then there are the typical operating expenses, like insurance, postage, office supplies, website, zoom account, Vimeo account, our office space in Lincoln to name a few.
While funds raised in our parent group can be used anywhere in the state, funds raised in our community groups stay local to promote the value, acceptance and inclusion opportunities.
If anyone ever has questions regarding how our money is spent, or how you can get a new program to help families in your community, please don't hesitate to reach out to us.
You can call 402-413-0199 or email us at firstname.lastname@example.org
Down Syndrome Advocates in Action was founded on the principles that every family deserves to feel supported. In addition to our mission we have the following purpose and vision:
Down Syndrome Advocates in Action Nebraska, is a group for parents run by parents.