Postnatal Diagnosis
Welcome New Parents
CONGRATULATIONS upon the birth of your child! Because your child was born with Trisomy 21, it is our desire to help you gain information and support for the journey that lies ahead.
The birth of a new baby is, and should be, a time for celebration and the feeling of joy. Your baby may not be exactly as you have dreamed, but please let us assure you that your baby is more like other babies than unlike. In fact, your baby is a baby first and foremost, and this unexpected diagnosis is just a part of who your child is. Just like all babies, your baby needs you for your guidance, your safe-keeping and, most importantly, your nurturing love.
The following links are resources that might help you as you begin this new journey.
Nebraska Down Syndrome Diagnosis Information and Support Act
In 2016 the Nebraska State legislature passed a law requiring Doctors to provide accurate, non biased information to families who receive a new diagnosis of Down syndrome. A web page was created on the Nebraska Department of Health and Human Services website that medical professionals can send families to, in order to get current information and fulfill their requirements under the law. We were proud to work on this project, help put together the information for the web page, and monitor it to ensure the information remains current.
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National Society of Genetic Counselors
Down Syndrome Fact Sheet Just the facts, When faced with a new diagnosis, it is very important to receive unbiased information. Unfortunately, new families continue to report that they receive a great deal of medically biased information. That is one of the reasons we like this fact sheet so much. There is no hidden agenda, just the facts. |
This book offers support and accurate, reliable information to the new parents of a baby with Down syndrome. The book covers topics like breastfeeding, adjusting to a diagnosis, preparing siblings, understanding medical issues, preparing for the future, and, most importantly, it shares diverse stories about the daily lives of families whose children have Down syndrome at different ages.
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321 Parent to Parent ProgramOften parents who receive a new diagnosis of Down syndrome, are not very familiar with the condition, and don't know anyone who was born with Trisomy 21. There are many families in our are who would be willing to meet with you and share a little about what life is like with an extra chromosome. Contact us to find out more.
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