Prenatal Diagnosis

Welcome Expectant Parents

We are sure you are experiencing a large range of emotions as you adjust to the diagnosis of Down syndrome. We invite you to contact our organization so that we may offer you support. Receiving a diagnosis that your baby will have Down syndrome can be very overwhelming. The following resources and information are intended to help new or expectant parents learn more about the condition and provide accurate and up to date information about their baby's future. We hope these resources will help families understand how having a child with Down syndrome can enhance the family unit.
Contact dsaaofne@gmail.com to be added to our mailing list, to request a hospital visit, welcome gift, receive a support packets, or to request a parent to parent match.

Nebraska Down Syndrome Diagnosis Information and Support Act.

In 2016 the Nebraska State legislature passed a law requiring Doctors to provide accurate, non biased information to families who receive a new diagnosis of Down syndrome. A web page was created on the Nebraska Department of Health and Human Services website that medical professionals can send families to, in order to get current information and fulfill their requirements under the law. We were proud to work on this project, help put together the information for the web page, and monitor it to ensure the information remains current.

Access DHHS Website

DHHS Printable PDF

DHHS Printable PDF en Español

Down Syndrome
Pregnancy

"Diagnosis to Delivery"book is specifically written for expectant mothers who are preparing for the birth of a baby with Down syndrome. It will answer your pregnancy and birth questions, validate your emotions, provide coping advice, and give you hope for the future.

Lettercase.org

"Understanding Prenatal Screening and Testing for Chromosome Conditions", created by Lettercase, is specifically for parents that have been offered testing and want more information about the different kinds of testing and conditions for which they are being tested.

Lettercase also offers a very informative free on-line booklet called "Understanding a Down syndrome Diagnosis" Here you can learn more information about what a Down syndrome diagnosis will mean for your child..

Baby Center

"Welcoming Babies with Down syndrome"- a great resource for those looking for basic facts and characteristics about the condition. When you are ready, the "BabyCenter Down syndrome Community" is a knowledgeable and supportive on-line community of parent's supporting other parents.