You Spoke, We Listened
Just six days ago we closed our online survey where we asked families in the local Down Syndrome Community what supports and resources were important to them. Over 70 people responded to the survey. While we haven't had a chance to completely analyze all the data to report back to you, there was one thing that stood out above the rest. Over half the families only attend 1-2 events a year because they are busy, and the events are not conveniently located for them.
You spoke. We listened. We took action. We would like to announce the creation of a new webinar series to help families who have a loved one with Down syndrome in the state of Nebraska. The very first Family Connection Webinar will be held on Friday, June 23 at 8PM. Our topic will be Celiac Disease and gluten free eating. You will be able to join the webinar from your computer, smartphone or tablet. We would like to ask everyone to bring one or two of their favorite gluten-free recipes to share with the group. Our webinar will be 30 minutes long. If after the 30 minutes are up, there are participants who want to continue the discussion, we will take a 10 to 15 minute break and have a final 40 minute session starting at approximately 8:45.
We plan to continue hosting monthly webinars, and may work up to doing them more often if families have hot topics to discuss. We are already working on additional topics like potty training, sign language, IEP's and more.
We have created a closed Facebook group to help us manage the discussions and where we can privately share information and links and reocording of our webinars. Click here to join our private group and get the invitation link to the first webinar.
Down Syndrome Advocates in Action Nebraska, is a group for parents run by parents.