A New Diagnosis
When families first enter into the world of Trisomy 21 (T21), also known as Down syndrome, it often happens with with little warning or preparation. Many report being scared, confused, anxious, or even terrified. Often those feelings are also accompanied by deep love and concern for their new or unborn baby.
It is quite a shock that can really send a family into a tailspin. Parents love thier child very much, yet all of their background knowledge (which for many of us was very limited prior to diagnosis) and inner voice may scream out, “This is the worst news possible!”
For some this grieving takes longer to process than for others. However, for many of us, it just takes a few seconds of looking into the eyes of our sweet, precious little baby to realize that this might not be the journey we planned, but our tour guide is pretty darn awesome.
Taking time to grieve for the life we thought we were getting is important step in the healing process, and helps us get to the next step, acceptance.
This photo featuring a sweet girl named Ella sums it up.
Down Syndrome Advocates in Action Nebraska, is a group for parents run by parents.